Thursday, June 9, 2011

Prayers

Our nephew (Gene's side) Greg's 3 year old son Bryson (better known as Buffalo) was diagnosed with Stage 4 neuroblastoma. He has a malignant tumor in his abdomen as well as cancer in his bone marrow and bones.

He will get five rounds of chemo and then surgery to remove what's left of the tumor followed by another round of chemo. After this he will get a bone marrow transplant and then radiation. He has also been accepted into a study that will allow him to receive Antibody Therapy which has upped his prognosis by 20-30%

The little guy starts his road to recovery today with his first round of chemotherapy.

All prayers are appreciated.

Bryson and his family - he's the guy in the middle.

Monday, June 6, 2011

Good Medicine

I have a super bad cold.

This morning I decided I'd hurry and clean the house, do the wash and then go back to bed.

I did and was sleeping soundly when I was awakened by the phone. Ugh!

But it was my cousin Leilani in Florida and she was just calling to say hi and howzit going and we talked for about 15 minutes and it was just what I needed to make me feel better.

Why? Because Leilani is such a positive person - nothing gets her down - not her cancer which she has been battling for years, not her back problems which leave her incapacitated sometimes, not the fact that her husband is out of work.

Amazing lady.

But then I got to thinking maybe these things do get her down at times and she chooses to deal with them by lifting others with her positive inspirational spirit.
Either way - it's good medicine.

Sunday, June 5, 2011

This Week

Gabe comes home tomorrow night.

Girls in school all week.

A bit of work to do each day - not too much though ;)

Get ready for departure next Saturday - Milwaukee til Tuesday morning. Just me this time.

Friday, June 3, 2011

Baltic Sights

Stuff we ate.

Islands between Helsinki & Stockholm

Our cabin is top right window next to the ladder


Sky at 11:30 p.m.

Sky at 1:30 a.m.

I would definitely go back to the Baltics - maybe rent a house on one of those islands for about a week and just relax...spend a couple of days in Stockholm (which I think is now my 2nd favorite European city - after Budapest)

Thursday, June 2, 2011

Helsinki

We had a wonderful weekend in Helsinki and Stockholm (and most especially on the cruise between these 2 cities). My bag dropped on the floor and my camera inside broke :(

I only have stale photos from my phone - which I will post later.

Everyone survived back home. Gabe is in Utah til next Monday and Jacob comes home in 48 days!!!

Thursday, May 26, 2011

Hectic

Yesterday I had a full day conference I was coordinating for ACECH - with Mayor, Lt. Governor AND Governor all speaking. I also had to get Gabe ready to fly out, get the girls out of school early, get Gabe to the airport AND then take the girls to Girls Club! Oh I forgot - I also had to go to the dentist!!!

I am happy to report - MISSION ACCOMPLISHED!

The conference went off without a hitch - except the Governor was late but no biggie.
Gabe and Lakona got to the airport in plenty of time and are now in Utah until June 6.
I did get to the dentist.
Gene picked up Michelle which saved me a stop.
Had 30 minutes to spare before Girls Club - so visited with Brandi and took a 5 minute nap.
Whew! Home by 8:30!

Girls Club was awesome. It is 1 Wed. per month at Easter Seals and is a Club for girls with intellectual disabilities - they play games, have dinner, etc. It is the perfect place for Michelle and Hannah. Finally - they have FRIENDS!

Today we leave for Helsinki - back on Tuesday. Can't wait to sleep on the plane!

Tuesday, May 24, 2011

Michelle's Car

Michelle got a plasma car for her birthday.
Luckily it has a weight limit of 200 lbs. because lots of grownups rode it.

Steve



George (Susan's boyfriend)



Susan


Gabe



And finally


Michelle!

Special Recognition

Hannah got a Special Recognition Award at school last week for Resiliency! She sure has displayed resiliency as she's faced the challenges of seizures, classroom changes and a psycho teacher!

Hannah & Mom & Dad

Hannah & Aunty Leo

Hannah & Mrs. Juliet - the WONDERFUL teacher (not to be confused with Ms. PSYCHO teacher)
We are so proud of Hannah!

Sunday, May 22, 2011

14!



Hard to believe it - but she is!

She thinks she looks cool when she winks.

Small Town Local Feeling

Kaneohe has that small town local feeling - and I love it. It was brought home to me once again as I attended Castle High School's graduation last night.
  • Everyone seemed to be there
  • Seemed like Everyone knew everyone else
  • Cars were parking everywhere - on the medial strip, in no parking areas, double parking - and no parking tickets were issued
  • Oh the police were there - enjoying the festivities
  • Everyone cheered for everyone's else's graduate (as the names were called)
  • Samoan, Japanese, Korean, Haole, Hawaiian, Filipino names called out with perfection
  • Only about 1000 people had actual tickets for the event but many more arrived early and stood around waiting to rush the field to congratulate their graduate
  • You could never bring enough lei to this graduation - after you give to everyone you know you want to give to the kids who don't have as many
  • At 9:00 the graduates are driven through Kaneohe town on buses bound for Project Grad Night activity. The streets are lined with folks wishing them well.
I love Kaneohe.

Monday, May 16, 2011

Gene's 60th

We had a great time in Phoenix and Utah for Gene's birthday. Here's one picture - blurry - from our final morning.

Saturday, May 7, 2011

PaRTy Day

Lots of reasons to celebrate at the beach today -

birthdays (3!)
anniversaries
family

Love it.

Friday, April 29, 2011

Monday, April 25, 2011

The Conversation

Hannah talks to herself. Here's how it went this morning -

Hannah 1 - "Come on - change your clothes"
Hannah 2 - "Maybe you're not my boss."
Hannah 1 - "Hey don't give me that attitude?"
Hannah 2 - "Hannah - Tell her to get ready."
Hannah 1 - "You better get ready"
Hannah 2 - "Who said you can tell me what to do?"
Hannah 1 - "You need to listen"
Hannah 2 - "You're not my boss"
Hannah 1 - "What did you say to me?"
Hannah 2 - "Hannah - Tell her not to say that"
Hannah 1 - "Don't say that"
Hannah 2 - "But I asked you a question - Is today Friday?

To which all I have to say is " Who's on first??????"

Sunday, April 24, 2011

Saturday, April 23, 2011

Epilogue

So my excitement about the slim chance of seeing the Northern Lights - deflated.

Gene tells me he saw them TWICE - in Utah.

Who'd have thought?

And where was I?

Thursday, April 21, 2011

Decision Made

Gene and I cancelled a trip last year and the result was that we each had a $1000 American Airline voucher that we had to spend by a certain date or lose it completely.

We toyed around with lots of possibilities. Criteria for destination was:

1) Earn as many miles as possible
2) Route had to have seats we could upgrade to First
3) Once there, spend as little $ as possible.

And the winner is...
Well not all of the Baltics -
Finland & Sweden.

We leave 26 May for Helsinki - tour the city on the 28th then embark on a two day cruise to Stockholm.

I know its a little late in the season but...
if I could have my wish...
I'd like to see
The Northern Lights!

Tuesday, April 19, 2011

The Cure

Psycho teacher = Migraine with no end

I want both to


It's up to me to let go of the string.

Monday, April 18, 2011

Saturday, April 16, 2011

What A Difference 24 Hours Makes!

Today is a MUCH better day.

Susan came over to take her sisters to the beach.

Gabe only had a two hour rehearsal.

My step-mom called and gave me a needed pep talk.

Gene and I went to a conference where I received the Parent of the Year Award.

They served delicious veggie burgers for lunch at the conference.

Steve and Azeema came to the conference to give me a lei when I got the award.

Came home and Hannah is taking a nap.

And tonight I am going to see Jump! at the Hawaii Theater with my good friend Cynthia and Gabe and his friend Isaiah.

Yesterday - nasty yesterday is almost a memory.

Revealed

Secret #1 - Laura Boman is not only sweet, she is also a good driver (I guess not so secret)
Secret #2 - I am going to a luncheon today and getting a big award - Parent of the Year (don't tell the person who turned me in to CPS yesterday)

Friday, April 15, 2011

Ginny and the Terrible, Horrible, No Good, Very Bad Day

The worst day of my life was April 9, 1999 - the day we lost our son Michael.

The next worst day was in 2008 when we got some bad news about a relative.

The third worst day was Feb. 28, 1996 when my mother died.

Today is the 4th worst day.

Someone told a lie about me - called CPS and reported that I neglect Hannah and don't supervise her. I know who did it and why. They did it out of pure vengeance because they were mad about a stand I had to take in regards to Hannah.

I may be bossy, pushy and demanding but I am NOT neglectful. I am a good mother.

CPS quickly closed the file when I told them who I thought made the report and why. They actually confirmed my suspicion in an unmistakeable way.

But still - to think someone hates you soooo much that they would try to hurt your family in such a terrible way!

Lots of tears today...Lots of lessons to be learned here...but still...right now - it sucks to be me.

Thursday, April 14, 2011

Aloha 'Oe

Maui Bids Aloha to a True Island Treasure
“Ali‘i” Arlington Chang Passes Peacefully at his Home in Kula

KULA, Maui – Ali‘i Arlington Chang, 69, of Kula, Maui passed peacefully in his sleep on Wednesday, April 13, 2011. A “Celebration of Life” will be held on Saturday, July 9, 2011 from 9 a.m. to 2 p.m. at Ali‘i Kula Lavender. Aliʻi is survived by his son, Forrest Koa Chang.

“Our hearts ache, yet we’re comforted and inspired by Ali‘i’s love and his everyday actions that encouraged us all to live life fully and with aloha,” said Lani Weigert, co-owner, Ali‘i Kula Lavender.

Anyone who knew Ali‘i recognized one thing – he was truly a steward of aloha. “He was an old-school, strong-minded, often stubborn Chinese-Hawaiian farmer,” said Weigert. “Yet he was a gentleman committed to an impeccable work ethic who was in-tune with nature, a magnificent storyteller, and unbeknownst to him, a comedian who was a hoot to be around. Above all, he was wise and gifted,” said Weigert.

Folks who knew Ali‘i would agree that everything he touched flourished and turned to gold. “Maui has lost one of its treasures. We’ll miss him very much, but thankfully, his spirit will live on here at Ali‘i Kula Lavender,” Weigert stated.

The staff of Ali‘i Kula Lavender gathered at Ali‘i’s home on Tuesday night for a crew meeting. “He cooked the most delicious and delectable roast with locally-grown vegetables. We all had such an enjoyable evening together,” Weigert shared. It would be the last time the AKL staff would share an evening with him.

Ali‘i came by his green thumb naturally. He grew up on a 20-acre farm in Kāne‘ohe, O‘ahu. He watched and learned from his grandmother who could grow anything placed before her and had a recipe for every crop. Ali‘i would often say, “she made me express art in whatever I did.” The beauty of his work can be seen across the farm’s 13-acre stretch. On any given day, Ali‘i could be found nurturing lavender fields with attention to detail and robust charm. Though his lavender beauties are not native to Maui, they have settled on the majestic Kula mountain under Ali‘i’s care, with style and grace.

Back in March 1976, he opened Ali‘i Gardens Nahiku, an isolated community along the winding Hana Highway on the rainy eastern coast of Maui where Ali‘i grew tropical exotic plants with Hana farmer Howard Cooper of Helani Gardens. In 1992, Ali‘i purchased a protea farm in Kula.
In 2001, Ali‘i was given a single lavender plant by his dear friend Emma Veary. One of Hawai‘i’s most respected vocalists of all time, Veary to this day is affectionately known as “Hawai‘i’s Golden Throat.” Ali‘i planted the herb with the best of intentions and it truly took off! He transformed that farm into his own lavender wonderland – a true work of art that Ali‘i Kula Lavender is today.


“Ali‘i prided himself on having an impeccable and ever-changing canvas for all eyes to see and enjoy,” said Weigert. “He took considerable pride in his work and the work of his staff. Of his many traits, Ali‘i was a true perfectionist.”
Ali‘i’s vision was to create Ali‘i Kula Lavender as the premier purveyor of “Sustainable Aloha” through educational stewardship that nurtured the well-being of our island community while contributing to the well-being of the planet for future generations.

At Ali‘i’s request, no services will be held. A celebration of his life will be held on July 9, a day when Ali‘i, Weigert and their staff plan to hold their First Annual Sustainable Aloha Summer Festival.

Further, the Ali‘i Chang Foundation will be established to provide scholarships for Native Hawaiians pursuing skills training in agriculture and for agricultural education in our local schools. Scholarship recipients should embody the very qualities Ali‘i possessed including a strong work ethic, as well as innate and natural skills in growing plants, flowers, trees and food crops. Applicants should also have an eye for design, a commitment to aloha, hospitality and “aloha ʻāina” or “love for the land.” More information will be posted at www.aklmaui.com

For more information or to make a donation to the Ali‘i Chang Foundation, please contact Lanim@aklmaui.com

Tuesday, April 12, 2011

Still Holding My Breath

Haven't gotten Jacob's email yet :(

The Hulk

The "new" car's license plate reads PWG---

So we will call it THE HULK.

Why?

PWG=Pro Wrestling Guy=Hulk Hogan=The Hulk

Of course pretty and smart people would have figured it out on their own.

Monday, April 11, 2011

In Demand

Every year I attend a meeting/conference sponsored by the federal government (SAMHSA) about Fetal Alcohol Spectrum Disorders (FASD). The meeting is held in various locations around the country and they cover all expenses. I spoke at one of the meetings several years ago.

This year the meeting is in Phoenix in May. Attached to that meeting is another FASD meeting for the Native Expert Panel on FASD, which I sit on. Again, expenses covered plus a very nice honorarium.

Well last week Gene was asked to speak at the big conference! He will speak about FASD from a father's perspective. He'll get his expenses paid AND get a speaker's fee!!!

Thanks Obama (never thought I'd say that in a non-sarcastic way) for a nice getaway for us!!!

I leave on May 9 because my meeting starts on May 10. Gene leaves May 10. Our meetings are over on the 13th and we are flying to Utah for the weekend (it was cheaper for the feds to fly us back with stopover in Utah than coming straight back from Phoenix).

That weekend also happens to be Gene's birthday - so --- what a deal!

Sunday, April 10, 2011

What Gene Did Today

Bought a new car to replace SHRED.

Well - actually bought a 1991 Toyota Camry (53,000 miles).
Later we'll use the rest of the insurance $$ to buy another car when Jacob gets home.

We've had excellent luck with craigslist AND 1991 Toyota Camrys. This is our 3rd.

Almost Pau

Today's the last day of Brigadoon. I am sure Gabe is exhausted.

Then on Monday I know he's full swing into Dance Concert rehearsal.

Oh to be young again.

Saturday, April 9, 2011

Busy Saturday

Well no horseback riding today so I thought it would be relaxing Saturday - but we went to my cousin's 16th birthday party - had Hawaiian food (drool Stephanie) and swam - came home and I'm pooped!

Tonight its off to Gabe's play again. I think I can sing every song!